Tehran University of Medical Sciences

Science Communicator Platform

Stay connected! Follow us on X network (Twitter):
Share By
Completeness and Accuracy of Death Registry Data in Golestan, Iran Pubmed



Hasanpourheidari S1 ; Jafaridelouei N1 ; Shokoohifar N1 ; Sedaghat SM2 ; Moghaddami A2 ; Hosseinpour R2 ; Poorabbasi M3 ; Gholami M3 ; Semnani S1 ; Naeimitabiei M4 ; Honarvar MR2 ; Fazel A5 ; Etemadi A6, 7 ; Bray F8 Show All Authors
Authors
  1. Hasanpourheidari S1
  2. Jafaridelouei N1
  3. Shokoohifar N1
  4. Sedaghat SM2
  5. Moghaddami A2
  6. Hosseinpour R2
  7. Poorabbasi M3
  8. Gholami M3
  9. Semnani S1
  10. Naeimitabiei M4
  11. Honarvar MR2
  12. Fazel A5
  13. Etemadi A6, 7
  14. Bray F8
  15. Roshandel G1

Source: Archives of Iranian Medicine Published:2019


Abstract

Background: We aimed to evaluate completeness and accuracy of the Golestan Death Registry (GDR) to identify cancer-related causes of death (CCoD). Methods: The GDR data (2004-2015) were compared with cancer data collected from clinical/pathological sources (the considered gold standard) by the Golestan Population-Based Cancer Registry (GPCR). Using a linkage method, matched cases, including subjects with CCoD and those with ill-defined cause of death (ICoD) (garbage codes), were identified and entered into the final analysis as study subjects. The completeness (percentage of study subjects with CCoD) and accuracy (number of subjects with correct CoD from the total number of study subjects) of the GDR were calculated. Results: In total, 3,766 matched cases were enrolled. Overall, the completeness and accuracy of the GDR for identifying CCoD were 92.7% and 53.2%, respectively. There were variations by cancer site and age group, with completeness and accuracy highest for brain cancer (96.3%) and leukaemia (79.8%) while the lowest accuracy was observed for colorectal cancer (29.9%). The completeness and accuracy of GDR was higher in patients aged under 60 years (95.7% and 53.6%, respectively). We also found higher completeness (93.7%) and accuracy (55.8%) in residents of rural areas. Conclusion: Linkage of death registry data with cancer registry data can be a significant resource for evaluating quality of the death registry data. Our findings suggested that completeness of the GDR for identifying CCoD is reasonable, but accuracy is relatively low. Access to clinical and pathological data from other sources and enhanced training of death certifiers can improve the present situation. © 2018 The Author(s).
Related Docs
View other Related Docs
1. Building a Cancer Biobank in a Low-Resource Setting in Northern Iran: The Golestan Cancer Biobank, Archives of Iranian Medicine (2021)
2. Building Cancer Registries in a Lower Resource Setting: The 10-Year Experience of Golestan, Northern Iran, Cancer Epidemiology (2018)
3. Risk of Second Primary Neoplasms Among Cancer Survivors: A Population-Based, Cohort Study in Golestan Province, Northern Iran, 2004–2019, Cancer Medicine (2025)
Experts (# of related papers)
View all Related Experts
Reza Malekzadeh (11)
Hossein Poustchi (5)
Other Related Docs
4. Development of a Tool for Comprehensive Evaluation of Population-Based Cancer Registries, International Journal of Medical Informatics (2018)
5. Colorectal Cancer Incidence Trends in Golestan, Iran: An Age-Period-Cohort Analysis 2004–2018, Cancer Epidemiology (2023)
6. Trends in the Incidence of Stomach Cancer in Golestan Province, a High-Risk Area in Northern Iran, 2004-2016, Archives of Iranian Medicine (2020)
7. Diseases and Health Outcomes Registry Systems in I.R. Iran: Successful Initiative to Improve Public Health Programs, Quality of Care, and Biomedical Research, Archives of Iranian Medicine (2017)
8. Esophageal and Gastric Cancer Incidence Trends in Golestan, Iran: An Age-Period-Cohort Analysis 2004 to 2018, International Journal of Cancer (2023)
9. Completeness and Underestimation of Cancer Mortality Rate in Iran: A Report From Fars Province in Southern Iran, Archives of Iranian Medicine (2015)
10. Breast Cancer Incidence Trends in Golestan, Iran: An Age-Period-Cohort Analysis by Ethnic Region, 2004-2018, Cancer Epidemiology (2024)
11. Epidemiology of Head and Neck Cancers in Northern Iran: A 10-Year Trend Study From Golestan Province, Archives of Iranian Medicine (2018)
12. Cancer Incidence in Iran in 2014: Results of the Iranian National Population-Based Cancer Registry, Cancer Epidemiology (2019)
13. Recent Cancer Incidence Trends and Short-Term Predictions in Golestan, Iran 2004–2025, Cancer Epidemiology (2020)
14. Cancer Incidence in the East Azerbaijan Province of Iran in 2015-2016: Results of a Population-Based Cancer Registry, BMC Public Health (2018)
15. Prediction of Cardiovascular Disease Mortality in a Middle Eastern Country: Performance of the Globorisk and Score Functions in Four Population-Based Cohort Studies of Iran, International Journal of Health Policy and Management (2022)
16. Examining the Completeness of Breast Cancer Pathology Reports Registered in the Population-Based Cancer Registration System and Spatial Analysis of the Incidence of This Cancer in Iran in 2016, International Journal of Cancer Management (2023)
17. Mortality Rates and Years of Life Lost Due to Cancer in Iran: Analysis of Data From the National Death Registration System, 2016, International Journal of Cancer Management (2022)
18. National and Subnational Patterns of Cause of Death in Iran 1990-2015: Applied Methods, Archives of Iranian Medicine (2017)
19. Expected Years of Life Lost Due to Adult Cancer Mortality in Yazd (2004-2010), Asian Pacific Journal of Cancer Prevention (2016)
20. The Global, Regional, and National Burden of Oesophageal Cancer and Its Attributable Risk Factors in 195 Countries and Territories, 1990-2017: A Systematic Analysis for the Global Burden of Disease Study 2017, The Lancet Gastroenterology and Hepatology (2020)