Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease

Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease Publisher Pubmed

Vitale A¹ ; Della Casa F² ; Ragab G^{3, 4} ; Almaghlouth IA^{5, 6} ; Lopalco G⁷ ; Pereira RM⁸ ; Guerriero S⁹ ; Govoni M¹⁰ ; Sfikakis PP¹¹ ; Giacomelli R¹² ; Ciccia F¹³ ; Monti S¹⁴ ; Ruscitti P¹⁵ ; Piga M¹⁶ Show All Authors

Vitale A¹
Della Casa F²
Ragab G^{3, 4}
Almaghlouth IA^{5, 6}
Lopalco G⁷
Pereira RM⁸
Guerriero S⁹
Govoni M¹⁰
Sfikakis PP¹¹
Giacomelli R¹²
Ciccia F¹³
Monti S¹⁴
Ruscitti P¹⁵
Piga M¹⁶
Lomater C¹⁷
Tufan A¹⁸
Oprisbelinski D¹⁹
Emmi G²⁰
Hernandezrodriguez J²¹
Sahin A²²
Sebastiani GD²³
Bartoloni E²⁴
Akkoc N²⁵
Gunduz OS²⁵
Cattalini M²⁶
Conti G²⁷
Hatemi G²⁸
Maier A²⁹
Parronchi P²⁰
Del Giudice E³⁰
Erten S³¹
Insalaco A³²
Li Gobbi F³³
Maggio MC³⁴
Shahram F³⁵
Caggiano V¹
Hegazy MT^{3, 4}
Asfina KN⁶
Morrone M⁷
Prado LL⁸
Dammacco R⁹
Ruffilli F¹⁰
Arida A¹¹
Navarini L¹²
Pantano I¹³
Cavagna L¹⁴
Conforti A¹⁵
Cauli A¹⁶
Marucco EM¹⁷
Kucuk H¹⁸
Ionescu R¹⁹
Mattioli I²⁰
Espinosa G²¹
Araujo O²¹
Karkas B²²
Canofari C²³
Sota J¹
Laymouna AH³
Bedaiwi AA⁵
Colella S⁷
Giardini HAM⁸
Albano V⁹
Lo Monaco A¹⁰
Fragoulis GE¹¹
Kardas RC¹⁸
Berlengiero V¹
Hussein MA³
Ricci F²⁶
La Torre F³⁶
Rigante D^{37, 38}
Wiesikszewczyk E³⁹
Frassi M⁴⁰
Gentileschi S⁴¹
Tosi GM⁴²
Dagostin MA⁸
Mahmoud AAMA³
Tarsia M¹
Alessio G⁹
Cimaz R⁴³
Giani T⁴³
Gaggiano C¹
Iannone F⁷
Cipriani P¹⁵
Mourabi M¹
Spedicato V⁷
Barneschi S¹
Aragona E⁴⁴
Balistreri A⁴⁵
Frediani B⁴¹
Fabiani C⁴²
Cantarini L¹

Source: Internal and Emergency Medicine Published:2022

Abstract

Purpose of the present paper is to point out the design, development and deployment of the AutoInflammatory Disease Alliance (AIDA) International Registry dedicated to pediatric and adult patients with Behcet’s disease (BD). The Registry is a clinical physician-driven non-population- and electronic-based instrument implemented for the retrospective and prospective collection of real-life data about demographics, clinical, therapeutic, laboratory, instrumental and socioeconomic information from BD patients; the Registry is based on the Research Electronic Data Capture (REDCap) tool, which is thought to collect standardised information for clinical real-life research, and has been realised to change over time according to future scientific acquisitions and potentially communicate with other existing and future Registries dedicated to BD. Starting from January 31st, 2021, to February 7th, 2022, 110 centres from 23 countries in 4 continents have been involved. Fifty-four of these have already obtained the approval from their local Ethics Committees. Currently, the platform counts 290 users (111 Principal Investigators, 175 Site Investigators, 2 Lead Investigators, and 2 data managers). The Registry collects baseline and follow-up data using 5993 fields organised into 16 instruments, including patient’s demographics, history, clinical manifestations and symptoms, trigger/risk factors, therapies and healthcare access. The development of the AIDA International Registry for BD patients will facilitate the collection of standardised data leading to real-world evidence, enabling international multicentre collaborative research through data sharing, international consultation, dissemination of knowledge, inclusion of patients and families, and ultimately optimisation of scientific efforts and implementation of standardised care. Trial registration NCT05200715 in 21/01/2022. © 2022, The Author(s).

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Style	Citing Format
MLA	Vitale A, et al.. "Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease." Internal and Emergency Medicine, vol. 17, no. 7, 2022, pp. 1977-1986.
APA	Vitale A, Della Casa F, Ragab G, Almaghlouth IA, Lopalco G, Pereira RM, Guerriero S, Govoni M, Sfikakis PP, Giacomelli R, Ciccia F, Monti S, Ruscitti P, Piga M, Lomater C, Tufan A, Oprisbelinski D, Emmi G, Hernandezrodriguez J, ... Cantarini L (2022). Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease. Internal and Emergency Medicine, 17(7), 1977-1986.
Chicago	Vitale A, Della Casa F, Ragab G, Almaghlouth IA, Lopalco G, Pereira RM, Guerriero S, et al.. "Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease." Internal and Emergency Medicine 17, no. 7 (2022): 1977-1986.
Harvard	Vitale A et al. (2022) 'Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease', Internal and Emergency Medicine, 17(7), pp. 1977-1986.
Vancouver	Vitale A, Della Casa F, Ragab G, Almaghlouth IA, Lopalco G, Pereira RM, et al.. Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease. Internal and Emergency Medicine. 2022;17(7):1977-1986.
BibTex	@article{ author = {Vitale A and Della Casa F and Ragab G and Almaghlouth IA and Lopalco G and Pereira RM and Guerriero S and Govoni M and Sfikakis PP and Giacomelli R and Ciccia F and Monti S and Ruscitti P and Piga M and Lomater C and Tufan A and Oprisbelinski D and Emmi G and Hernandezrodriguez J and Sahin A and Sebastiani GD and Bartoloni E and Akkoc N and Gunduz OS and Cattalini M and Conti G and Hatemi G and Maier A and Parronchi P and Del Giudice E and Erten S and Insalaco A and Li Gobbi F and Maggio MC and Shahram F and Caggiano V and Hegazy MT and Asfina KN and Morrone M and Prado LL and Dammacco R and Ruffilli F and Arida A and Navarini L and Pantano I and Cavagna L and Conforti A and Cauli A and Marucco EM and Kucuk H and Ionescu R and Mattioli I and Espinosa G and Araujo O and Karkas B and Canofari C and Sota J and Laymouna AH and Bedaiwi AA and Colella S and Giardini HAM and Albano V and Lo Monaco A and Fragoulis GE and Kardas RC and Berlengiero V and Hussein MA and Ricci F and La Torre F and Rigante D and Wiesikszewczyk E and Frassi M and Gentileschi S and Tosi GM and Dagostin MA and Mahmoud AAMA and Tarsia M and Alessio G and Cimaz R and Giani T and Gaggiano C and Iannone F and Cipriani P and Mourabi M and Spedicato V and Barneschi S and Aragona E and Balistreri A and Frediani B and Fabiani C and Cantarini L}, title = {Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease}, journal = {Internal and Emergency Medicine}, volume = {17}, number = {7}, pages = {1977-1986}, year = {2022} }
RIS	TY - JOUR AU - Vitale A AU - Della Casa F AU - Ragab G AU - Almaghlouth IA AU - Lopalco G AU - Pereira RM AU - Guerriero S AU - Govoni M AU - Sfikakis PP AU - Giacomelli R AU - Ciccia F AU - Monti S AU - Ruscitti P AU - Piga M AU - Lomater C AU - Tufan A AU - Oprisbelinski D AU - Emmi G AU - Hernandezrodriguez J AU - Sahin A AU - Sebastiani GD AU - Bartoloni E AU - Akkoc N AU - Gunduz OS AU - Cattalini M AU - Conti G AU - Hatemi G AU - Maier A AU - Parronchi P AU - Del Giudice E AU - Erten S AU - Insalaco A AU - Li Gobbi F AU - Maggio MC AU - Shahram F AU - Caggiano V AU - Hegazy MT AU - Asfina KN AU - Morrone M AU - Prado LL AU - Dammacco R AU - Ruffilli F AU - Arida A AU - Navarini L AU - Pantano I AU - Cavagna L AU - Conforti A AU - Cauli A AU - Marucco EM AU - Kucuk H AU - Ionescu R AU - Mattioli I AU - Espinosa G AU - Araujo O AU - Karkas B AU - Canofari C AU - Sota J AU - Laymouna AH AU - Bedaiwi AA AU - Colella S AU - Giardini HAM AU - Albano V AU - Lo Monaco A AU - Fragoulis GE AU - Kardas RC AU - Berlengiero V AU - Hussein MA AU - Ricci F AU - La Torre F AU - Rigante D AU - Wiesikszewczyk E AU - Frassi M AU - Gentileschi S AU - Tosi GM AU - Dagostin MA AU - Mahmoud AAMA AU - Tarsia M AU - Alessio G AU - Cimaz R AU - Giani T AU - Gaggiano C AU - Iannone F AU - Cipriani P AU - Mourabi M AU - Spedicato V AU - Barneschi S AU - Aragona E AU - Balistreri A AU - Frediani B AU - Fabiani C AU - Cantarini L TI - Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease JO - Internal and Emergency Medicine VL - 17 IS - 7 SP - 1977 EP - 1986 PY - 2022 ER -

Style

Citing Format

MLA

Vitale A, et al.. "Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease." Internal and Emergency Medicine, vol. 17, no. 7, 2022, pp. 1977-1986.

APA

Vitale A, Della Casa F, Ragab G, Almaghlouth IA, Lopalco G, Pereira RM, Guerriero S, Govoni M, Sfikakis PP, Giacomelli R, Ciccia F, Monti S, Ruscitti P, Piga M, Lomater C, Tufan A, Oprisbelinski D, Emmi G, Hernandezrodriguez J, ... Cantarini L (2022). Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease. Internal and Emergency Medicine, 17(7), 1977-1986.

Chicago

Vitale A, Della Casa F, Ragab G, Almaghlouth IA, Lopalco G, Pereira RM, Guerriero S, et al.. "Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease." Internal and Emergency Medicine 17, no. 7 (2022): 1977-1986.

Harvard

Vitale A et al. (2022) 'Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease', Internal and Emergency Medicine, 17(7), pp. 1977-1986.

Vancouver

Vitale A, Della Casa F, Ragab G, Almaghlouth IA, Lopalco G, Pereira RM, et al.. Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease. Internal and Emergency Medicine. 2022;17(7):1977-1986.

BibTex

@article{ author = {Vitale A and Della Casa F and Ragab G and Almaghlouth IA and Lopalco G and Pereira RM and Guerriero S and Govoni M and Sfikakis PP and Giacomelli R and Ciccia F and Monti S and Ruscitti P and Piga M and Lomater C and Tufan A and Oprisbelinski D and Emmi G and Hernandezrodriguez J and Sahin A and Sebastiani GD and Bartoloni E and Akkoc N and Gunduz OS and Cattalini M and Conti G and Hatemi G and Maier A and Parronchi P and Del Giudice E and Erten S and Insalaco A and Li Gobbi F and Maggio MC and Shahram F and Caggiano V and Hegazy MT and Asfina KN and Morrone M and Prado LL and Dammacco R and Ruffilli F and Arida A and Navarini L and Pantano I and Cavagna L and Conforti A and Cauli A and Marucco EM and Kucuk H and Ionescu R and Mattioli I and Espinosa G and Araujo O and Karkas B and Canofari C and Sota J and Laymouna AH and Bedaiwi AA and Colella S and Giardini HAM and Albano V and Lo Monaco A and Fragoulis GE and Kardas RC and Berlengiero V and Hussein MA and Ricci F and La Torre F and Rigante D and Wiesikszewczyk E and Frassi M and Gentileschi S and Tosi GM and Dagostin MA and Mahmoud AAMA and Tarsia M and Alessio G and Cimaz R and Giani T and Gaggiano C and Iannone F and Cipriani P and Mourabi M and Spedicato V and Barneschi S and Aragona E and Balistreri A and Frediani B and Fabiani C and Cantarini L}, title = {Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease}, journal = {Internal and Emergency Medicine}, volume = {17}, number = {7}, pages = {1977-1986}, year = {2022} }

RIS

TY - JOUR
AU - Vitale A
AU - Della Casa F
AU - Ragab G
AU - Almaghlouth IA
AU - Lopalco G
AU - Pereira RM
AU - Guerriero S
AU - Govoni M
AU - Sfikakis PP
AU - Giacomelli R
AU - Ciccia F
AU - Monti S
AU - Ruscitti P
AU - Piga M
AU - Lomater C
AU - Tufan A
AU - Oprisbelinski D
AU - Emmi G
AU - Hernandezrodriguez J
AU - Sahin A
AU - Sebastiani GD
AU - Bartoloni E
AU - Akkoc N
AU - Gunduz OS
AU - Cattalini M
AU - Conti G
AU - Hatemi G
AU - Maier A
AU - Parronchi P
AU - Del Giudice E
AU - Erten S
AU - Insalaco A
AU - Li Gobbi F
AU - Maggio MC
AU - Shahram F
AU - Caggiano V
AU - Hegazy MT
AU - Asfina KN
AU - Morrone M
AU - Prado LL
AU - Dammacco R
AU - Ruffilli F
AU - Arida A
AU - Navarini L
AU - Pantano I
AU - Cavagna L
AU - Conforti A
AU - Cauli A
AU - Marucco EM
AU - Kucuk H
AU - Ionescu R
AU - Mattioli I
AU - Espinosa G
AU - Araujo O
AU - Karkas B
AU - Canofari C
AU - Sota J
AU - Laymouna AH
AU - Bedaiwi AA
AU - Colella S
AU - Giardini HAM
AU - Albano V
AU - Lo Monaco A
AU - Fragoulis GE
AU - Kardas RC
AU - Berlengiero V
AU - Hussein MA
AU - Ricci F
AU - La Torre F
AU - Rigante D
AU - Wiesikszewczyk E
AU - Frassi M
AU - Gentileschi S
AU - Tosi GM
AU - Dagostin MA
AU - Mahmoud AAMA
AU - Tarsia M
AU - Alessio G
AU - Cimaz R
AU - Giani T
AU - Gaggiano C
AU - Iannone F
AU - Cipriani P
AU - Mourabi M
AU - Spedicato V
AU - Barneschi S
AU - Aragona E
AU - Balistreri A
AU - Frediani B
AU - Fabiani C
AU - Cantarini L
TI - Development and Implementation of the Aida International Registry for Patients With Behcet’S Disease
JO - Internal and Emergency Medicine
VL - 17
IS - 7
SP - 1977
EP - 1986
PY - 2022
ER -

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